Related Links

SHCN

Associations

American Diabetes Association
The American Diabetes Association is the nation's leading nonprofit health organization providing diabetes research, information, and advocacy.

American Obesity Association
The American Obesity Association is the only obesity organization focused on changing public policy and perceptions about obesity.

Brain Injury Association of America
The Brain Injury Association of America provides information and resources to individuals and their family members who have sustained a traumatic brain injury.

Brain Injury Association of Missouri
The Brain Injury Association of Missouri (BIA-MO) is a community based organization serving persons with brain injury, their families, caregivers, physicians, therapists, case managers and others throughout the state of Missouri.

Spina Bifida Association
The Spina Bifida Association of America (SBAA) addresses the specific needs of the spina bifida community and serves as the national representative of almost 60 chapters. SBAA's efforts benefit thousands of infants, children, adults, parents, and professionals each year.

General Resources

American College of Rheumatology
The American College of Rheumatology is an organization of physicians, health professionals, and scientists that advances rheumatology through programs of education, research, and advocacy that foster excellence in the care of people with arthritis and rheumatic and musculoskeletal diseases.

Arthritis Foundation
The Arthritis Foundation provides excellent information and resources on Arthritis.

Autism Society of America
The Autism Society provides excellent information and additional resources for information on Autism.

Center for Innovations in Education
Center for Innovations in Education (CISE) provides professional development services and resources for those who help to ensure that all learners achieve his/her potential. Services include an on-line catalog of medical resources, including dictionaries (good resource for parents if they are unsure of information they have been given).

Child Health Day
Resources developed by the Maternal and Child Health Library that support the ten health promotion themes emphasized by Child Health Day and form the basis of Bright Futures Guidelines, 3rd Edition.

Cystic Fibrosis Foundation
The Cystic Fibrosis Foundation assures the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease.

Easter Seals
Easter Seals provides services to children and adults with disabilities and other special needs, and support to their families.

Emergency Medical Services for Children
The Emergency Medical Services for Children is a national initiative designed to reduce child and youth disability and death due to severe illness and injury.

March of Dimes
March of Dimes researchers, volunteers, educators, outreach workers, and advocates work together to give all babies a fighting chance against the threats to their health: prematurity, birth defects, and low birthweight.

Missouri Head Injury Advisory Council
The Missouri Head Injury Advisory Council provides information about traumatic brain injury, resources and links to other state programs.

National Center for Hearing Assessment and Management
The National Center for Hearing Assessment and Management's mission is to have all infants and toddlers with hearing loss identified as early as possible and provided with timely and appropriate audiological, educational, and medical intervention.

Ortho World
Ortho World includes basic information for families, including a list of support groups.

Other Resources

2007 Toll-Free Numbers for Health Information
These selected toll-free numbers for organizations provide health-related information, education, and support. These organizations do NOT diagnose or recommend treatment for any disease.

Case Management Resource Guide
1677 records with web links on almost every possible medical condition, including many 800 numbers to call for additional information. This is part of the Dorland Health Care Information Site - and a good resource if a family is going to be relocating to another state (in addition to contact information for the local agencies we may be aware of).

Center for Children with Special Needs Care Notebook
The Care Notebook is an organizer for families who have children with special health care needs. Families use Care Notebooks to keep track of important information about their child's health and care. This makes it easier to find and share key information with their child's care team.

Family Village
Complete library for disability related resources.

Health A-Z
Health information from conception to seniors. It includes an "ask our expert" column which includes a pediatrician, nurse, and nutritionist for general questions and concerns.

Healthfinder
Site includes medical information that is easy to understand and covers a wide variety of subjects. It also includes a directory to find other agencies, clearinghouses, and resources for additional information.

Internet Resource for Special Children (IRSC)
Variety of resource links.

Med-Help International
Search alpha list for additional information on health topics.

National Library of Medicine
Part of the United States National Library of Medicine - is a good resource of additional information if there is a known syndrome diagnosed and more resources are needed.

U Seek U Find Medical Resources
Medical resources, including dictionaries (good resource for parents if they are unsure of information they have been given).

V.I. Guide
Specific information for assistive products for blind children and adults.